Bumps along the road
Saturday, January 6, 2007
Bumps along the road
Often we take 2 steps forward, and hopefully only 1 step back. Bailey was doing so well, drinking her new formula like a champ, hearty appetite, discovering yogurt, taking her meds as scheduled...until the holidays. Something has happened and she has decided that she does not want anymore meds. I have tried everything I can think of. I called Dr. Christiannse from the feeding clinic regarding the Prevacid and didn't get any help at all there. I think it's much harder for me to find the help and answers I need at times over the phone. Maybe I'm not conveying my desperation well enough verbally.
So I tried mixing the Prevacid in her yogurt. Per the website, this is not recommended because it reduces the acid levels in the stomach. But I guess some Prevacid is better than none so we tried it. It worked well at first but she caught on and started refusing her yogurts. Tonight I tried a Go-gurt again (it's the one in the tube) and after watching Bradley eat his, she finally tried it again. She ate almost the whole thing so that is great. At least we can continue those solid feedings every day. She wants nothing to do with the spoon though, most likely due to me mixing the Prevacid in her yogurt. I have decided to hold off on the meds for a while and see how she does. It's recommended to do this gradually but I'm tired of the constant battle and her spitting 2/3 of it back out and gagging on the remainder.
According to Dr. Christiannse, her UGI actually turned out pretty good. So she thinks Bailey is okay to wean off the meds gradually in another 2 months or so. If that is the case, then why does the spitting up still occur? And why does she cough so much, especially at night? Any why is she so hard to get to bed and won't sleep well at all? And why does she gag so much on her bottle, on her food, and on her paci? Why won't she take solid foods? And why does her breath still smell so bad like Bradley's? I felt like I was getting a mixed message and now I am much more confused. She mentioned weaning the meds after I told her about Bailey's coughing and frequent night wakings. I am also assuming her lack of interest in bottle feedings lately are due to teething again since that top tooth is still pushing through the gum. I hope it's not due to her reflux since I have stopped her meds. I think I'll continue the Mylanta during the night hours just in case she needs it. I could give her the Tagamet again if the Mylanta isn't enough since that prescription has not expired yet. But I am curious if she really needs the meds (if these symptoms will worsen) since her doctor said the UGI turned out so well.
Finally, if her reflux symptoms worsen while trying to wean her from the meds, then they want to do a PH Probe to see what's going on. And since she had such a rough start getting used to the Nutren Jr., her doctor said we could slow down the transition until February for completion, instead of the end of January. So that buys us some extra time on getting her adjusted.
Bumps along the road
Often we take 2 steps forward, and hopefully only 1 step back. Bailey was doing so well, drinking her new formula like a champ, hearty appetite, discovering yogurt, taking her meds as scheduled...until the holidays. Something has happened and she has decided that she does not want anymore meds. I have tried everything I can think of. I called Dr. Christiannse from the feeding clinic regarding the Prevacid and didn't get any help at all there. I think it's much harder for me to find the help and answers I need at times over the phone. Maybe I'm not conveying my desperation well enough verbally.
So I tried mixing the Prevacid in her yogurt. Per the website, this is not recommended because it reduces the acid levels in the stomach. But I guess some Prevacid is better than none so we tried it. It worked well at first but she caught on and started refusing her yogurts. Tonight I tried a Go-gurt again (it's the one in the tube) and after watching Bradley eat his, she finally tried it again. She ate almost the whole thing so that is great. At least we can continue those solid feedings every day. She wants nothing to do with the spoon though, most likely due to me mixing the Prevacid in her yogurt. I have decided to hold off on the meds for a while and see how she does. It's recommended to do this gradually but I'm tired of the constant battle and her spitting 2/3 of it back out and gagging on the remainder.
According to Dr. Christiannse, her UGI actually turned out pretty good. So she thinks Bailey is okay to wean off the meds gradually in another 2 months or so. If that is the case, then why does the spitting up still occur? And why does she cough so much, especially at night? Any why is she so hard to get to bed and won't sleep well at all? And why does she gag so much on her bottle, on her food, and on her paci? Why won't she take solid foods? And why does her breath still smell so bad like Bradley's? I felt like I was getting a mixed message and now I am much more confused. She mentioned weaning the meds after I told her about Bailey's coughing and frequent night wakings. I am also assuming her lack of interest in bottle feedings lately are due to teething again since that top tooth is still pushing through the gum. I hope it's not due to her reflux since I have stopped her meds. I think I'll continue the Mylanta during the night hours just in case she needs it. I could give her the Tagamet again if the Mylanta isn't enough since that prescription has not expired yet. But I am curious if she really needs the meds (if these symptoms will worsen) since her doctor said the UGI turned out so well.
Finally, if her reflux symptoms worsen while trying to wean her from the meds, then they want to do a PH Probe to see what's going on. And since she had such a rough start getting used to the Nutren Jr., her doctor said we could slow down the transition until February for completion, instead of the end of January. So that buys us some extra time on getting her adjusted.
posted by Paula @ 9:05 PM
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