Kids Eat
Monday, November 27, 2006
Okay, so Bailey had her first visit with the feeding clinic today. She is still down 1/2 a pound from last month but overall her weight and height are just fine. Weight for height is 75th percentile. We were there for 2 hours and went over so much. The therapist who did her initial feeding evaluation was also present so at least I didn't have to duplicate or explain a lot. She is being scheduled for an UGI to rule out any anatomical anomalies since she is still have so many reflux episodes. She had quite a bit while there and was pretty distressed over it all. Her head is too big, almost off the charts, so they are considering neuro-imaging but that can wait until later. She needs another hemoglobin (UGH!). And I need to have her on Nutren Jr. Exclusively by the end of January. It's not found locally so I need to order it online. (and this is after I have been all around town looking for the stuff!) Due to her lack of solid foods, she is not getting enough protein and other nutrients with formula/cereal alone. If I can't get her on it by then, we will have to take her back in early. Now that should be fun (sarcasm!). They want me to try to limit her formula intake so she will be hungry enough for solids but I have BTDT and she cries until she gets her bottle. So that will really be the toughest obstacle yet. She will continue bottle feedings due to her problems drinking from a sippy but we need to try to teach her to feed herself while in the highchair. Anyone have any success stories to share with me??? And we are supposed to do another dry spoon therapy which I am hoping they will meet with her therapist on because I think I might have forgotten the main points of it. We give her 5 bites from a dry spoon and then once she is willingly opening her mouth consistently every time for those 5 bites for 3 successive meals, I introduce a spoon dipped in juice. If she takes a step back, then we go back to the beginning. Once she has accomplished that goal, we move on to smooth purees instead of juice. This will be a loooonnnnnnng process for her. LOL A drug called Galviscon has been mentioned on the board. It is an old and rather outdated medication and was not recommended. So for those who noticed that and questioned it, apparantly there are better options out there now. Finally, she will continue her 30mg of Prevacid a day and her feeding therapy and we will meet back March 5th if no problems until then. Oh and we can continue the night feedings also! I was surprised about that but I guess it will be a goal for elimination coming up soon as long as she continues progressing.
We tried foods while at the evaluation today and she ate one small Gerber graduate noodle (I had cut it into 3rds) and spit out everything else but did take her bottle okay. She just wasn't in the mood for solids, imagine that. We did some comparisons between her and Bradley and the only thing she is on target for was the noodles. All else she has either regressed or refused altogether. Developmentally she is doing great which is a relief because Bradley had so many other issues in addition to the feeding problems. It's definitely genetic, but I'm not sure who to 'blame'. LOL All we can do is try the therapy and continue to wait for her reflux to resolve. I think her next therapy session is next Tuesday.
Okay, so Bailey had her first visit with the feeding clinic today. She is still down 1/2 a pound from last month but overall her weight and height are just fine. Weight for height is 75th percentile. We were there for 2 hours and went over so much. The therapist who did her initial feeding evaluation was also present so at least I didn't have to duplicate or explain a lot. She is being scheduled for an UGI to rule out any anatomical anomalies since she is still have so many reflux episodes. She had quite a bit while there and was pretty distressed over it all. Her head is too big, almost off the charts, so they are considering neuro-imaging but that can wait until later. She needs another hemoglobin (UGH!). And I need to have her on Nutren Jr. Exclusively by the end of January. It's not found locally so I need to order it online. (and this is after I have been all around town looking for the stuff!) Due to her lack of solid foods, she is not getting enough protein and other nutrients with formula/cereal alone. If I can't get her on it by then, we will have to take her back in early. Now that should be fun (sarcasm!). They want me to try to limit her formula intake so she will be hungry enough for solids but I have BTDT and she cries until she gets her bottle. So that will really be the toughest obstacle yet. She will continue bottle feedings due to her problems drinking from a sippy but we need to try to teach her to feed herself while in the highchair. Anyone have any success stories to share with me??? And we are supposed to do another dry spoon therapy which I am hoping they will meet with her therapist on because I think I might have forgotten the main points of it. We give her 5 bites from a dry spoon and then once she is willingly opening her mouth consistently every time for those 5 bites for 3 successive meals, I introduce a spoon dipped in juice. If she takes a step back, then we go back to the beginning. Once she has accomplished that goal, we move on to smooth purees instead of juice. This will be a loooonnnnnnng process for her. LOL A drug called Galviscon has been mentioned on the board. It is an old and rather outdated medication and was not recommended. So for those who noticed that and questioned it, apparantly there are better options out there now. Finally, she will continue her 30mg of Prevacid a day and her feeding therapy and we will meet back March 5th if no problems until then. Oh and we can continue the night feedings also! I was surprised about that but I guess it will be a goal for elimination coming up soon as long as she continues progressing.
We tried foods while at the evaluation today and she ate one small Gerber graduate noodle (I had cut it into 3rds) and spit out everything else but did take her bottle okay. She just wasn't in the mood for solids, imagine that. We did some comparisons between her and Bradley and the only thing she is on target for was the noodles. All else she has either regressed or refused altogether. Developmentally she is doing great which is a relief because Bradley had so many other issues in addition to the feeding problems. It's definitely genetic, but I'm not sure who to 'blame'. LOL All we can do is try the therapy and continue to wait for her reflux to resolve. I think her next therapy session is next Tuesday.
posted by Paula @ 11:05 PM
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